Beyond the Crisis

Beyond the Crisis is our education and healthcare improvement programme.

We work with healthcare organisations, schools and employers to improve understanding of sickle cell disease through evidence-based education, lived experience and practical resources.

By helping organisations better understand the realities of living with sickle cell, we aim to create more informed, compassionate and inclusive environments for everyone affected by the condition.

Areas of Focus

  • Healthcare

    Supporting healthcare professionals to deliver more compassionate, evidence-based sickle cell care.

    Through clinical resources, education, patient insight and future training programmes, we aim to bridge the gap between national guidance and everyday practice.

    Explore the Healthcare Resource Hub 

  • Education

    Helping schools, colleges and universities better support students living with sickle cell.

    From attendance and examinations to Individual Healthcare Plans and wellbeing, our goal is to equip education professionals with the confidence and knowledge to create supportive learning environments.

    Coming soon

  • Employers

    Supporting organisations to create workplaces where people living with sickle cell can thrive.

    We'll be developing practical guidance and training covering reasonable adjustments, flexible working, wellbeing and creating more inclusive workplaces.

    Coming Soon

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Why It Matters

Despite improvements in treatment, many people living with sickle cell continue to experience significant barriers across healthcare, education and employment.

Research has highlighted ongoing challenges including delayed pain relief, limited awareness of the condition, inconsistent support and misconceptions that can affect people's experiences and opportunities.

While improving systems takes time, better understanding can begin today.

Whether you're a healthcare professional, teacher, employer or colleague, the way you respond to someone living with sickle cell can have a lasting impact.

A split-panel scene showing a group therapy or counseling session with four people seated in a circle, plus a close-up of a notebook and a red card with supportive quotes on a desk. The wall behind them reads, 'Real stories.

Everything we develop is built around four principles:

Evidence-Based

Grounded in current guidance, research and best practice.

Lived Experience

Shaped by the voices of people living with sickle cell.

Practical

Focused on real-world actions organisations can take immediately.

Collaborative

Developed alongside healthcare professionals, educators, employers and the wider sickle cell community.

Working Together

We believe meaningful change happens when organisations and communities learn from one another.

As Beyond the Crisis grows, we hope to work alongside:

  • NHS Trusts
  • Haematology services
  • Primary Care
  • Ambulance services
  • Universities
  • Schools and Academy Trusts
  • Employers
  • Integrated Care Boards
  • Researchers
  • Community organisations

through education, consultation, patient insight and collaborative improvement projects.

Looking Ahead

Our long-term ambition is to become a trusted partner for organisations looking to improve the experience of people living with sickle cell.

Future initiatives include:

  • Educational workshops
  • Professional training programmes
  • Digital learning resources
  • Healthcare resource packs
  • Patient insight reports
  • School guidance
  • Employer toolkits
  • Service improvement projects
  • Strategic partnerships

Interested in Working With Us?

Whether you're looking to improve healthcare services, better support students or create a more inclusive workplace, we'd love to explore how we can work together.

Partner with Us